On this Page:
Procedure Manual
Childhood Diabetes Procedure Manual for Schools (pdf)
This 20-page procedure manual has been produced to orient school nurses to the system developed to collect and report required information regarding students with diabetes. Includes:
- Background Information
- School Nurse's Role
- Identifying Students with Diabetes
- Informing Students / Parents about the Database
- Obtaining Consent to Share Information
- Reporting Information to the Database
- Appendix A: Oregon Revised Statutes
- Appendix B: Script
- Frequently Asked Questions
Brochures
- Informational, 2-page, tri-fold, color brochure (pdf)
Intended for: schools and parents.
Available in: English, Russian, Spanish, Traditional Chinese, and Vietnamese versions
Text includes: Please Join Us. Help us help all kids with diabetes! Enroll your child in the Childhood Diabetes Database.
Answers: What Is It? What Are The Benefits? Do I Have To Do This?
Frequently Asked Questions (w/ Translated versions)
Download FAQs for printing:
What is the Childhood Diabetes Database, and how did it get started?In 2001, the state legislature passed a law requiring the Oregon Public Health Division to establish a system to learn how many children in Oregon are affected by diabetes.
What is the purpose of the Childhood Diabetes Database?The database was established so that we can better understand the impact of diabetes on children in Oregon. It appears that the number of kids in Oregon with diabetes is growing, but, until now, there has been no way to know this for sure. Information from the database may also help improve diabetes care. It may even help recognize things that increase children's risk for diabetes, perhaps even helping to prevent much of it.
Why should I give my consent?There are two important reasons:
- First, the database will only give an accurate picture of the impact of diabetes among children in Oregon if the information that it contains is complete. For the database to be effective in addressing the needs of children with diabetes, your help is very important. Doctors and nurse practitioners are required by law to report to the database. Schools are also required to report, but they can do so only if a parent gives permission.
- Second, you may have the opportunity to participate in research that may be beneficial to your child. Once your child is in the database, the Childhood Diabetes Database Program will contact you directly, to offer you the option to hear about research opportunities that arise. Any participation in research is completely voluntary, and you can rescind your permission to be contacted about these research opportunities at any time by contacting the Childhood Diabetes Database Program at the address or phone number above.
Is there any risk to sharing this information?The main risk is the possible illegal access to database records by someone without authorization, with whom you wouldn't want to share information (e.g., an insurance company). To prevent unauthorized access to the database, it is maintained on a secure computer at the Oregon Public Health Division, which includes the Childhood Diabetes Database Program. The information contained in the database is granted legal protection under Oregon law, and cannot be accessed even by court subpoena. Information from the database will be shared with others only in aggregate form (e.g., in the form of childhood diabetes incidence and prevalence rates). Patient contact information will be released to researchers ONLY if parents give their permission when contacted by the Childhood Diabetes Database Program.
What is the school's role in this process?We recognize that school nurses play an important role in developing plans at school to insure that your child's health needs are being met in a safe and appropriate manner. We need their help in making sure that reporting to the database is accurate. The school nurse's role is to ask you if you want to have your child's information included in the database, and to answer questions about that process. If you have further questions about the database and how it operates, please contact the
Childhood Diabetes Database Program.
School Reporting Form (w/ Translated versions)
Download forms for printing and completion.
Completed forms can be sent to:
- Childhood Diabetes Database
- 800 NE Oregon Street, Suite 730
- Portland, OR 97232
